Wednesday, April 14, 2010, 11:11 AM

Well on 4-6-2010 I was hysterical and laughing because of the Spanish video that was sent, now I am Worried or Nervous. Today at 2pm we have a cookie swallow test at PCMH and Beth is very nervous because Gage has had nothing by mouth in over 6 months since his feeding tube was put in and he has been wretching (which is horrible to witness) a lot in the last few weeks. His lungs to Aunt Kim already tell me he is aspirating his secretions and now today we are going to give him something to drink and hope to keep him from wretching, aspirating, and oh yes keep him breathing while all this is happening.  You see during these wretching events Gage likes to throw in those periods where he will have a hard seizure and stop breathing, so I feel like my nerves are on the outside of my body today. BUT WHAT THE LORD TAKES YOU TO-HE WILL TAKE YOU THRU......At least that is what I am holding onto with both hands today.  So whoever reads this be in pray for us today and the tech s who have to put up with Rambo Aunt Kim today because I will not put up with a lot when it comes to my sugar plum.  I know Beth is ready to knock me out this morning because i have called telling her to bring the Decompression tube for his feeding tube so I can draw out all that feeding if the wretching gets too bad, and an extra tube, and we have to be prepared with Diastat if he goes into a hard seizure---This test has to be done to see how much he is aspirating, if he can swallow, and then Speech Therapy can come in and work with strengthening his muscles in throat/jaw/head at home. Pray for us today. Tomorrow Gage has his follow up eye appt in Duke. They will see if he needs another ERG to determine the extent of blindness or if he is seeing better. To be honest at times i think he does focus a little better, and this must be when the seizures are controlled. This leads me to the fact that we have the DVD in English on the Vagal Nerve Stimulator that would be implanted in Gage's chest and then impulses would stimulate the nerve to the brain to interrupt seizures-however some drawbacks that Aunt Kim has seen and wants answers to-FDA approved for age 12 and up. Gage will be 2 in May. The type of seizures in Gage are multiple and the tested type with this device are 2 main types it seems.  Anyway we will speak with the MD and go from there. It is about Quality of Life, and again Beth and ML will make that decision based on what the Lord leads us to do.  The Lord's will be done in the end in all of our lives. So pray for us today. Thank you. The Lord has been Good to Us. We are so blessed. Aunt Kim
*BETH*