Tuesday, September 14, 2010

Has it really only been one day?? Wow it feels like 2-3 days since the last email and Gage was preparing to get his VNS. We have just arrived home from Duke, and we are all glad to be back home.  ML, Beth and Gage and I have had a very emotional and action packed time.  Yet, it went by at warp speed. I can honestly say it NEVER gets easier preparing Gage for surgery or a procedure etc....you would think we would become pros at this but no.  Aunt Kim was very glad to see Preacher Jay and Ms. Patsy, Amy and the boys to divert me from my mental breakdown.  When Jay walked up I was holding Gage and we were going over " Hotel, Hotel, that is where we want to be tonight. Hotel" Jay thought he was going to have to have me committed or sedated.  Sedated did not sound bad.  Jay and Amy both got to pray for us and I know a lot of people were praying for us back home and everywhere else.  He went in and they called for extra help for his hard IV.  Well,, that is a little nerve racking, but I am grateful. However, when it was all said and done he was stuck at least 3 times in his foot before they got an IV in his foot, and he had an IV in the bottom side of his wrist.  He has an incision on the left side of his neck and the MD hid the device really well on the left side of his chest but kind of under his arm because Gage likes chest physical therapy.  He was very sedated even when we were allowed to leave, and very agitated at times.  You cant grab him beneath his arms for a while, and Beth told me the nurse did while I was gone.  She was very lucky I did not see her.  We made it to the hotel after 6pm and we were on the second floor and the elevator was broken. Great. So, ML and I toted all the bags, totes, suction machine, portable crib (which Gage did not use), and Beth had Gage.  Gage laid on the bed and he looked comfortable. I went to TGI fridays and got food lots of it.....when we went to bed it was Gage and I in one bed with chairs/pillows/rails on one side and ML and Beth in the other bed at 1030-11pm.  At 1am Gage awakened wretching and in a seizure. We used the magnet, and suctioned him, and can I tell you at 1am this is NOT how I want to wake up.  So I laid there listening. waiting, and rubbed his back, head, patted, anything until about 4am when Beth got in bed with him and I got on the little couch they had in the room.  This still still did not stop me from jumping up at the slightest cough....I don't know how Beth and ML do it...anyway. Around 6am I got my shower and got Gage out of bed set him in the recliner with me and the suction machine and he slept better for about 1 1/2hours.......Now I am home and ready to fall face down, because I am not used to this. We have to go back in 2 weeks to have the device increased in intensity. It was funny because right after they gave me the magnets I put the box in my backpack with my wallet and I start reading all the material. Well after about 30 minutes I read "do not get magnets near debit or credit cards"....I look at my backpack and slowly take them out and go "oh well"............  It also said that if we go thru a metal detection device like at the court house- We have to rush Gage thru.......I laughed as I picture myself pushing Gage at breakneck speed thru a metal detection device in his stroller and cops chasing us........I am tired. Anyway, we have to return to Duke this Friday for another appt. I am going to go lie down.  Bless all of you.  It is very stressful, and Gage is having a lot of discomfort with his belly right now with starting his feedings back and going to the bathroom.  God is in Control.
*BETH*

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